First Call

If you have received a prenatal or a post delivery diagnosis of Down Syndrome know that you are not alone. The NNEDSC First Call Program is a service available to new and expectant parents of children with Down Syndrome. The program provides an opportunity to connect with other parents that have gone through many of the same feelings and emotions that you may be experiencing.

The NNEDSC First Call Program is a volunteer, state-wide group of trained parent mentors available 24/7 to listen, share, answer questions, and provide valuable information.

NNEDSC is available to provide you not only with accurate, up-to-date information but also the opportunity to speak with a parent mentor through our Parents’ First Call Program. Our resources and connections are free and confidential.

Expectant Parents

If you have received prenatal testing that suggests your baby has Down syndrome, you undoubtedly have many questions and are feeling many new emotions. Whether you received an elevated probability of having a baby with Down syndrome through a genetic screening, or received an official diagnosis of Down syndrome through an amniocentesis or chorionic villus sampling (CVS), the NNEDSC is here to support you every step of the way.

We can provide you with up-to-date accurate information about Down syndrome and connect you with a parent mentor who also received a prenatal diagnosis, through the First Call program. If you would like to be connected to one of First Call’s parent volunteers, please call 603-479-1589 or email info@nnedsc.net.

New Parents

Congratulations on the birth of your child!

If your newborn has received a diagnosis of Down syndrome, you are probably experiencing a wide range of emotions right now. It is important to remember, however, that you are not alone. New Hampshire has a large network of families who have a child with Down syndrome, who are supported by the NNEDSC.

The NNEDSC First Call program can connect you with another parent whose baby also received a postnatal diagnosis of Down Syndrome. Having someone to talk to who has been in your shoes, to answer questions and provide information, can be invaluable. If you would like to speak with one of First Call’s parent volunteers, please call 603-479-1589 or email info@nnedsc.net.

Welcome Packet

The NNEDSC will send you a welcome packet with the books Down Syndrome Parenting 101, Common Threads, a special baby calendar, and a gift for the new baby.  Local resources and medical information will also be included.  To request a welcome package, contact us at info@nnedsc.net or call 603-479-1589.

National Booklet- “Understanding a Down Syndrome Diagnosis”

The Joseph P. Kennedy, Jr. Foundation’s Understanding a Down Syndrome Diagnosis is an accurate, non-biased book to help you understand the many aspects of Down syndrome.  It contains up-to-date medical information, local and national resources, and was prepared with help from representatives from leading medical and Down syndrome organizations.  A free digital copy can be downloaded from Lettercase at http://lettercase.org/get-the-booklet/.  You can also contact us at info@nnedsc.net for a printed copy.